UPDATE 3/12/17 KASAIYA IS HOME!!! #TeamKASAIYA #HLHS

 #PRAYERWARRIORS Please send up a prayer of healing!!! We’ve got work to do!!
 #TeamKasaiya GoGundMe Link
12/22/16 To date she has had three heart surgeries due to having Hypoplastic Left Heart Syndrome. HLHS is a birth defect that affects normal blood flow through the heart causing the left side not to form correctly. Thus far, the last surgery has not turned out as they hoped and her physiology is not responding to the surgery. She is still in the hospital fighting for her life.

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From her Mother’s FB post..

***UPDATE #6*** KASAIYA HAS CHANGED FOR THE WORSE SINCE THE LAST UPDATE. HER STOMACH IS STILL DISTENDED (WORSE NOW)TO THE POINT HER BELLY BUTTON IS SO SMOOTHE IT FEELS LIKE HER TUMMY SMH. ASCITES (EXCESS ABDOMINAL FLUID) IS STILL PRESENT AND HER LIVER IS INFLAMED. SHE STILL CONTINUES TO HAVE A HIGH TEMP 101-102 SINCE EARLY LAST WEEK AND THE BLOOD TESTS AND CULTURES ARE NOT SHOWING INFECTION BUT SOMETHING IS CAUSING IT. SHE’S ON MORPHINE, TYLENOL 3 FOR THE PAIN SHE’S IN. I WOKE UP TO HER SCREAMING THIS MORNING 😔. JUST SPOKE WITH THE DOCTOR AND HE STATED HE’S VERY CONCERNED AT THIS POINT. SHE’S GOING DOWNHILL AND HER PHYSIOLOGY IS NOT TAKING IN THIS SURGERY, HE SAID IT’S GOTTEN WORSE. SHE’S ON 90% OXYGEN AND INFECTIOUS DISEASE WILL BE COMING IN TO ASSESS HER. TOMORROW THEY WILL BE DOING ANOTHER CARDIAC CATHERIZATION AND ARE HOPING IT GIVES SOME ANSWERS. SHE HAS SKIN BREAKDOWN ON HER BOTTOM AND IF YOU COULD SEE WHAT I SEE, YOU WOULD BREAK DOWN IN TEARS! IT IS HORRIBLE! 🙁. I INSTANTLY FELT FAINT AND HAD TO WALK OUT FOR A MINUTE. DOCTORS SAY THEY’RE WORRIED AND FRUSTRATED. THEY CAN’T GET HER TO TOLERATE FEEDS WHICH SHE NEEDS TO HELP AID THE RECOVERY PROCESS. NOTHING SEEMS TO BE WORKING AND AT THIS POINT I DON’T KNOW WHAT TO DO!!! THE LOOK ON THE DOCTOR FACE WHILE SPEAKING WITH ME PUT A HUGE KNOT IN MY STOMACH!!! HE LOOKED SO CONCERN AND SCARED AND STATED HE KNEW I WAS VERY CONCERNED AS WELL. OMG….LORD GIVE ME STRENGTH….I JUST CAN’T… NOT MY BABY. THIS CAN’T BE HAPPENING. #MOMMYDAUGHTER #DAUGHTERMOMMY #JUSTUS #TEAMKASAIYA

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